It has been revealed that Bob Saget, who recently died unexpectedly on Sunday, was privately helping a 9-year-old girl who suffers from a debilitating skin condition, scleroderma.
Scleroderma is the catch-all name for a group of rare diseases that involve hardening and tightening of the skin and connective tissue. Scleroderma affects women more often than men and is the disease from which Saget’s sister, Gay, died at the age of just 47 in 1994.
Saget, who died unexpectedly in his sleep on Sunday, had become an advocate for finding cures for the disorders that cause skin problems. Two years ago, he got involved in the medical care of Sophie Anne, 9 years old.
According to TMZ, “Bob sent the little girl personalized videos, always with comfort and hope…” We’re going to find a cure, sending lots of love. “”
Bob had done so much for Sophie Anne that she even wrote a school essay titled “Bob Saget: My Everyday Hero”.
Saget also invited Sophie Anne and her family to attend one of the shows in North Carolina, meeting the family backstage.
Now, grieving Saget fans have donated over $ 80,000 to the Scleroderma Research Foundation on Bob’s behalf to support the cause he championed throughout his lifetime.
Saget had posted a message on Instagram about Sophie and her medical issues which led fans to donate to the foundation to help her and those like her with scleroderma.
Follow Warner Todd Huston on Facebook at: facebook.com/Warner.Todd.Huston.