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Altoona, Iowa Family Desperately Seeks Cure For Girl With HCA


A family in Altoona is racing against time to treat their little girl, who has a rare disease. They are trying to provide a cure for clinical trials. Currently, there is no cure for Alice, 10 months old, which causes temporary paralysis. That’s one in a million diagnoses. Because it’s so rare, it’s up to families to work directly with doctors on treatments and fundraising. Tim Silver says his daughter’s smile and laughter light up a room. He doesn’t want it to go away. She was born with alternating childhood hemiplegia, or AHC. This means that Alice suffers from episodes of uncontrollable limb movements and painful cramps all over her body. The more episodes she has, the more likely she is to have long-term side effects. desperate need of funding to make it happen, ”Silver said. Their hope is in gene therapy and editing procedures. It takes money to make it happen. That’s why they’re co-hosting an AHC Race to End with another family from Iowa affected by the disorder. The 5K will take place on October 3, 1 p.m. to 3 p.m. at Pella Christian High School. You can find out more or donate at alicesarmy.com.

A family in Altoona is racing against time to treat their little girl, who has a rare disease. They are trying to provide a cure for clinical trials.

Currently, there is no cure for Alice, 10 months old, which causes temporary paralysis.

That’s one in a million diagnoses. Because it’s so rare, it’s up to families to work directly with doctors on treatments and fundraising.

Tim Silver says his daughter’s smile and laughter light up a room. He doesn’t want it to go away.

She was born with alternating childhood hemiplegia, or AHC. This means that Alice suffers from episodes of uncontrollable limb movements and painful cramps all over her body.

The more episodes she has, the more likely she is to have long-term side effects.

“We’re so close to the cure. There’s just the lack of awareness and the desperate need for funding to make it happen,” Silver said.

Their hope is in gene therapy and editing procedures. It takes money to make it happen.

That’s why they’re co-hosting an AHC Race to End with another family from Iowa affected by the disorder. 5K is October 3, 1 p.m. to 3 p.m. at Pella Christian High School.

You can find out more or donate at alicesarmy.com.

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