ALS Ice Bucket Challenge helped fund the development of a new treatment drug: NPR


Participants flip buckets of ice water over their heads as they compete in the World Record Ice Bucket Challenge at the Etihad Stadium on August 22, 2014 in Melbourne, Australia.

Scott Barbour/Getty Images


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ALS Ice Bucket Challenge helped fund the development of a new treatment drug: NPR

Participants flip buckets of ice water over their heads as they compete in the World Record Ice Bucket Challenge at the Etihad Stadium on August 22, 2014 in Melbourne, Australia.

Scott Barbour/Getty Images

If you think back to 2014, you might recall videos scattered across your social media feeds showing your friends standing in their backyards waiting and smiling nervously for the cold shock that was about to hit them.

After your friend talked for a bit and pledged to donate money to the ALS Association, a huge bucket of ice cold water was poured over their head, soaking them as they tried to shake off the cold . And whether before or after, each video included a challenge to another friend to do the same.

This is how almost every ALS Ice Bucket Challenge has gone – and while it may have seemed like it was just a social media trend, it has actually made a huge difference in the world of ice hockey. ALS research.

The ALS Association said $2.2 million in funds raised through the Ice Bucket Challenge went to fund development and testing of the new drug the Food and Drug Administration approved this week for the treatment of ALS. , also known as Lou Gehrig’s disease. .

“We thank the millions of people who have donated, participated and enabled us to invest in promising therapies like AMX0035 that will immediately help people living with ALS,” said Calaneet Balas, President and CEO of the ALS Association. “This is a victory for the entire ALS community, who have come together to advocate for early approval” of the treatment.

The new drug is not a cure for the deadly neurodegenerative disease, but it does slow its effects. Balas said funding for the challenge has “significantly accelerated the fight against ALS”.

The drug recently approved by the FDA is not the only one to benefit from the challenge. More than $115 million has been raised through the trend, and the ALS Association said it is funding 130 research projects in 12 different countries, as well as 40 potential treatments in development.


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