A mum’s search to find her 7-year-old son’s vital bone marrow match continues


A Butler County mother has been trying to spread the word about finding a partner for her 7-year-old son since October 2021, when she learned he had a rare autoimmune disease affecting only one in 1.6 million people. This Mother’s Day, Missy Ramirez shared her story of fear and hope for her son, Jax Ramirez’s battle with IPEX. The only possible cure is a bone marrow transplant, and out of millions of people signed up to donate, no one is up to Jax. “For people of color, it’s really hard to find someone just because of the lack of diversity in the donor campaign,” Ramirez said. With the uncertainty of the illness, Missy said they needed to act quickly. “We have to find a game while Jax is healthy, and it turned out to be harder than I thought, but I’m not going to give up hope,” Ramirez said. Over the past 7 months, she and her family have organized numerous giving campaigns and helped nearly 4,000 people register to become a potential donor. “Our mission is not just to save Jax, but it’s to save everyone else. Today, 18,000 people are looking for their perfect match to save lives,” Ramirez said. To register, text “JAX” to 61474, and a collection kit will be sent to your home. bone marrow donor, or you may be able to save a life. “I wake up every day and see him bouncing around and smiling, but deep down inside I know it could be taken away from me the next day,” Ramirez said. For more details on future donor events live, follow “Be the Match for Jax” on Facebook, Instagram and Tiktok.

A Butler County mother has been trying to spread the word about finding a partner for her 7-year-old son since October 2021, when she learned he had a rare autoimmune disease affecting only one in 1.6 million people.

This Mother’s Day, Missy Ramirez shared her story of fear and hope for her son, Jax Ramirez’s battle with IPEX.

The only possible cure is a bone marrow transplant, and out of millions of people signed up to donate, no one is up to Jax.

“For people of color, it’s really hard to find someone just because of the lack of diversity in the donor campaign,” Ramirez said.

With the uncertainty of the illness, Missy said they needed to act quickly.

“We have to find a game while Jax is healthy, and it turned out to be harder than I thought, but I’m not going to give up hope,” Ramirez said.

Over the past 7 months, she and her family have organized many donation drives and helped close to 4,000 people register to become a potential donor.

“Our mission is not just to save Jax, but to save everyone else. Eighteen thousand people are now looking for their perfect match to save lives,” Ramirez said.

To register, text “JAX” to 61474, and a collection kit will be sent to your home.

You might never match someone who needs a blood or bone marrow donor, or you might just be able to save a life.

“I wake up every day and see him bouncing around and smiling, but deep down inside I know it could be taken away from me the very next day,” Ramirez said.

For details on future live donor events, follow “Be the Match for Jax” on Facebook, Instagram and Tiktok.




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